So at the start of 2017 I had put into place some goals that I would like to work towards with James for the year.
It's now June and I decided to sit down and reflect on the goals I had put into place for James baby.
Now, I had also constructed what I thought was a pretty GOOD early intervention schedule for James. I had included school, sporting activities, early intervention program for school readiness and his main therapies which are Speech and OT.
So his schedule going into the school year was to look a little like this:
Monday & Tuesday - Early Intervention Unit ( school readiness program)
Wednesday - Preschool
Thursday- OT, speech and soccer training
Weekends- regulation, family time and home based therapies and social interactions.
I know RIGHT.... the above schedule looks pretty damn SWEET. I had everything ticked off!
Well... the time came to implement this schedule. Day 1 of EIU. Mum was pumped, on paper this was the best thing for James!
WRONG.... I pulled him out quicker than you could say CHEESE!
I won't go into what I saw on that day BUT note I made a very firm complaint to the department of education! I was NOT going to leave my developing child in that environment.
So there went my plan. Down the toilet. As soon as I walked away that day, I got in the car and called his OT, she suggested James do 3 days of preschool instead of the 2 days that were planned. Quick phone call to the preschool director and he was IN. So the schedule now included 3 days of preschool and no EIU program.
Everything happens for a reason they say!
So for the first term we decided not to include the soccer training that James had done all year last year. Our reasons why were we didn't want to overload him to much too quickly.
Our schedule worked so perfectly for term 1 of 2017 that come term 2 we decided it was time to add back in soccer. James was PUMPED, he had been waiting. He asked about soccer constantly!!!
Day 1 of soccer and James had NEW coaches.
James officially did 1 lesson of the term. He was fabulous, he did the entire 1 hour session with amazing listening skills. BUT his new coach was not ASD aware... that's all I will say about that. Excellent program, amazing supportive teachers previously BUT regardless of what was previous and regardless of the program if the teacher is not right then nothing will work. This teachers actions gave James such severe anxiety that he would not walk back into soccer.
So, Mum was devastated! Soccer is james' thing!
I watched my little boy refuse something he LOVES because of the actions of someone who is suppose to be a mentor!
So I have contemplated many times over the last few weeks what we are going to sub the soccer training with. And as I love the program and the previous teachers I think we have a term off and possibly look at soccer again in term 4, of course NOT with that particular coach.
So that's the schedule for James baby for 2017. We are almost at the end of term 2 and hubby and I both agree everything is working quite well. BUT it remains flexible. Things change and we need to be able to bend and adapt to whatever James needs at any given time and as all my ASD peeps know that can quite often be in an instant!
So my goals for James for 2017 were:
3. Writing his name
4. Riding a bike
Obviously the above are quite BIG goals.
BUT in January of 2017 James learnt to ride a bike! And we haven't looked back. We went on a holiday to my parents property in Tasmania at the start of the year and my Dad had a bike there for James to ride. James fell, he cried but he kept trying and he DID IT! Great achievement and I am super proud we have this one down pat!
It's great for James' sensory regulation.
Toilet: so we aren't there yet.
But we have come pretty far. James now uses the bathroom every day before and after his bath. He will also use the bathroom for number 1's maybe 30% of the time at school when he is asked if he needs to go.
So although I would love nothing more to have my 4 year old out of nappies I have to think about how far he has come on that journey and I am happy with the progress.
FOOD: I am pleased to announce to you all that my once non eating child has been averaging a bowl of gluten free weetbix and purse apple a day and either an apple slinky or banana.
BUG BIG BIG news there...
James' eating is a tuff one. He has FPIES, a lot of anxiety around food based on his allergies.
James has a huge team of specialists which deal with this part here and the key is NO anxiety around food at all.
So James baby can spell his name, recognise his name...
He can't yet write him name and a lot of it come down to being able to hold a pen or pencil.
This goal right here is my number ONE goal for the school holidays that are fast approaching us.
Kmart sell these abc and 123 tracing letter books, so will get back to you on this goal.
So on reflection of 6 months work, I am HAPPY. How could I not be, seriously. This kid is moving forward. Sometimes it feels relentless and repetitive and I think that's why it's important to often sit and reflect on everything.