Its Friday here in the land of OZ.
What a whirlwind week we have had in this household. I say this as I sit in my lounge room amongst a toy tornado.
The one thing that has well and truly gone to the bottom of the list is housework and my OCD is not really caring all that much, I think because I have so many other things going on at the moment to stress about the house.
For those of you that haven't been following our journey over the last couple of weeks I am going to share a little about what has been going on.
Approximately 4 weeks ago now Scarlett developed what we thought to be a stutter. The day after it started I had her straight to the GP for recommendation. GP said it's common for girl as and boys of this age group to have a stutter phase. Although I was happy with her answer my mummy gut knew there was much, much more to this than just being a stutter.
Fast forward a couple of weeks and the stutter was looking far more like a tic or seizure.
Back to the GP for referral on to Scarlett's paediatrician.
Within a couple of days Scarlett had a tic so bad her jaw was locking up!
Her jaw would move side to side, eyes roll back and body jolts. This was happening every time she spoke.
I waited with severe anxiety for our paediatrician. The morning of this appointment I vomited 3 times. I knew deep down it wasn't ok. This wasn't the once thought stutter.
Our paediatrician is amazing and he calmed me right down the moment I walked in. He told me to slow down and take my time, he knew I was a mess.
He watched all the videos I recorded of Scarlett and assessed her. He said I am firm with I think she has PANDAS. PANDAS is a rare autoimmune disorder caused by strep bacteria. It's when the child can't create antibodies to fight the infection so the infection attacks the body.
The paediatrician then gave me a script for 3 months of antibiotics for Scar, told me to commence straight away, referred us to a neurologist and gave me the referral for an EEG at the children's hospital. He then wrote a letter for Scarlett's ENT and said those tonsils need to come out.
After a 40 minute appointment I left with my head spinning. Not only am I dealing with a child with autism and his early intervention requirements, it now appears my other child has an autoimmune disorder.
Scarlett then had her ENT appointment yesterday. We are scheduled for surgery next week. Those tonsils need removing asap. She needs a few more days of medication before surgery as they won't take infected tonsils out. Her ENT has a few PANDAS children in his care and all have had the works. Grommets, adenoids and tonsil removal. Tonsils is the last step for Scar as she had grommets and adenoids done 6 months ago.
I have been crippled the last few weeks. My stomach in knots constantly. Unable to eat and drink. The kind of stress that makes your whole being cold.
PANDAS is a manageable condition. Autism is a different way of thinking.
I am a strong mother and I will get through it all.
I am here for whatever they need and whatever it takes.
Right now it's about one day at a time. Scarlett has so much to attend now and I have to squeeze it all in and juggle around James' appointments, but we will get through it.
Thanks for the love and continued support.