Spring has sprung!!! With the change of the season I have woken with a change in my mindset! Yesterday was a hard hard day, James went into pretty extreme overload and I was at my LIMIT. When he is in overload its so important for me to be on my game but I just couldn't... he had drained me of everything I had LEFT! I got angry with him and shouted at him a few times and when I laid my head on the pillow I felt AWFUL. He can't help it at all and its not fair that I wasn't there for him in the way that he needed me. I was too worried about cleaning up the mess.... something I have to learn to let go of because my children are more important than whether I have got polished floors and finger print free windows.
SO I woke with a new attitude! This morning was GREAT... we painted our canvas', played play doh and drew pictures on the chalk board. OBVIOUSLY there was paint hands EVERYWHERE, Play doh EVERYWHERE and the drawing didn't just stay on the chalk board BUT I had two happy and healthy kids. My house was filled with laughter and positive vibes!!! So we headed to James' speech therapy appointment at lunch time and his therapist was super impressed with the hard work we had put in this week. GOOD JOB JAMES! You bloody trooper! For those of you that don't know, James lost his speech at about 18 months old... he went from single word vocabulary to NOTHING! Mum, Dad, duck all those great single words were GONE! So we had his hearing checked which lead to grommets, then adenoid removal.... I got him into speech therapy and started researching how to get this kid to talk. I read somewhere you should not put any pressure on the child and have conversations with them like they are answering you back! Today after almost a year of weekly speech therapy James is now on phrases level and we are working on clearing up sounds! I use bombardment at home and we hold him accountable with speech, meaning he has to use his words when asking for something. This technique obviously goes out the window when James is in sensory overload... because speech is the first thing to GO!
AN UPDATE on the FORMULA situation.... After stressing my eyeballs out yesterday I spoke with someone at medicare (thank you -you know who you are) and got on the blower to my favourite specialist, James' IMMUNOLOGIST who is onto it! He assures me he WILL get the script. How the hell can they deny us of something James has lived on since birth! They can't .... if not I will be selling THEO'S body parts (actually NO can't do that he pays the BILLS).... BUT come on pharmaceutical company YOU GREEDY TWATS, $700 for 16 tins is RIDICULOUS!
Anyway this afternoon we are having family time. I anticipate I will break up 10 sibling fights, clean 513 toilet accidents from the floor (2 x toilet training kids is SOOOOOOOOOO FUN), no doubt be still picking the play doh up from the earlier play doh fight, probably watch CARS the movie 5 times, may throw some water balloons... BUT I will NOT be doing any house work and I will kiss and cuddle my precious little family because thats ALL that matters !
FINALLY, today is the 1st of September... The first day of CANCER AWARENESS month. My nephew has incurable brain cancer. He was diagnosed at the precious age of 3. He will lose his life. Many children are losing their lives to this horrible disease... If you see the opportunity to help another family suffering with this terrible illness do something NICE, buy that fundraising badge that costs $5 sitting on the local business counter (the the hell needs the over priced coffee from the coffee shop), donate some toys to sick children at the local hospital. Make a small gesture... it makes a HUGE impact on the lives of families suffering! And don't forget to wear YELLOW!!!
Much love, Sharna xx
Welcome! Welcome! Welcome to James' Health Journey something I started to help me get through the good days and the bad days, why pay a psychologist when I can put it all on paper right?! A diary where I could look back and see what worked and what didn't. Ultimately I want to bring awareness to Autism Spectrum Disorders and show the world that these amazing little humans are well AMAZING! And with the right therapies, endless love, positive vibes and support these beautiful souls can shine out away from the shadows! When James was diagnosed his psychologist said to me 'are you ready for three years of full time early intervention', my response was WHATEVER IT TAKES! So here we are..... Thank you for following us and enjoy the ride! @jameshealthjourney