SATURDAY MORNING 8.30amm.....
At the moment I am really struggling...
James is an absolute MESS!
I could easily not write this right now but I have to, A-for my sanity and B-to show you truly what SPD and ASD is like.
So James is overloaded.... his glass is well and truly overflowing!
He had a late night hospital visit last night because his wound is infected. The strangers, the poking the bright lights, the pain, being overtired has all contributed to today.
We arrived back home at 11.45pm last night and James was in a wake/sleep state so he wasn't quite on this planet, as a result it was difficult to re settle him, he was fighting the exhaustion and trying to play. Finally asleep but he had a horrendous night of tossing, turning and screaming out. I slept with him so I was on edge for the few hours he slept.
And of course he was UP when the SPARROWS woke! 6am.... YAWN, YAWN, YAWN.
Why can't he sleep in???
So this morning he is screaming at me continuously.
Screaming for 5000 different things all at the same time. Now I have to make the decision, do I make him as comfortable as possible and ignore all the commands or o I try deliver everything he screams for??? I could be here all day trying to find what he needs!
He is controlling where I sit (actually standing while I write this because I am not allowed to sit on the couch). He has demolished the house, pulled everything out... I still don't know why he does that!
His speech has disappeared and he is grunting! I F**KING HATE the grunt, that is the one thing that really pushes all my buttons!!!
I am exhausted, my nerves are firing and he is so uncomfortable... I haven't seen him this bad in a long time.
Like this morning he has repeated the words 'push top button' at me no less than 1000 times, each time he gets louder, more distressed.... I gave him 4 different devises thinking it was a ipad button. Now I think he is replaying the hospital visit to digest and regulate himself and he may be talking about an elevator button.
So today we are LOCKED in, no one in and no one out (except for DAD he can come home from work). James needs to regulate and he needs to sleep.
Its also going to be a trying week on top of everything we have going on as a busy ASD family we now have to give James antibiotics 4 times a day!
Firstly, getting it into his mouth is so bloody hard.
Getting him to swallow it is even harder and now I have to go into gut damage control! We are just getting his gut bacteria all nice a NORMAL.
Anyway sorry to dump my crap on here on a Saturday morning BUT I wouldn't be sharing our true journey if I didn't share these very hard moments.
People drink tequila in the morning right?