Do you ever get stuck between doing right by your child and doing right by others?
Do you get to a point where you say, 'F**K IT, you can bitch and moan all you like but we aren't conforming'?
Sorry that was two questions.
It comes from a place where I can no longer do things that are going to set James off. Because he was doing so well for a while, I let his needs slip a little bit.
Like commiting to functions when I know damn well he is going to suffer so badly but I did it out of guilt and sick of hearing on the grapevine that we 'don't ever attend anything'. Or that I am rude because I have requests when you are around my son.
I would like to just say in a big, loud, fierce voice that its hard. It's hard raising a child with special needs. What makes it worse is the lack of understanding I find. Just because people often don't see James in meltdown or having a hard day they think he can just function normally. WRONG
Also... to get him to function normally whilst around these particular people it takes many events to get to that level of comfort. EXAMPLE: Talking about the situation for sometimes weeks in advance, providing visual aide, actioning a sensory diet so he is regulated... then after the situation providing James with regulation and some serious 'quiet' down time.
These years right now are crucial years for developing my son... so if you don't like something I am here to say BITE ME! BITE ME! BITE ME! I am no longer going to buy into anyones chitter chatter or selfish games. First and formost is JAMES... end of story.
So now that I have that out in the air to manifest in some ignorant minds... I am going to have a brilliant day. Actually I am going to have a brilliant weekend! I hope you all have a very happy and safe christmas. I won't get to my blog over the weekend... BUT, I will do a little Christmas photo gallery for you all early in the week. Stay tuned on Instagram though because that will be updated.