Hello beautiful world!
It's 12.30pm here.
I just got back from a NDIS Information event. NDIS is the new national disability scheme rolling out. It's a lifelong system for those that need extra assistance. After going to this event this morning I am 100% for this new scheme (hope that doesn't bite me on the bum in the future). The new scheme seems flexible, full of possibility and opportunity. There were a lot of people uming and arghing at the event. I understand why, its NEEDS tested and if you are not great at looking at the holistic image of care (meaning schooling, community, social and home life) then you will struggle to receive the services for yourself or who you care for. It's going to take a lot of pre- planning and goal setting. But $22 billion dollars for disability services is a huge amount and its going to mean so much to society in a few years time when people are starting to get what they NEED not what they are TOLD they can HAVE. I am excited for the future and so should Australia, it's going to be a better environment for all!!!
So yesterday afternoon I had a HARD TIME. James was seeking and pulling the house apart. I could NOT keep up with him. He demolished his new flag poster, toys were thrown and food munched into everything.
Instead of chasing him. I allowed him to tear the house apart and I sat in the son for a little CRY. I started thinking 'am I doing enough', 'what is missing', 'what else can I do'. I starting then thinking about how far he has come. He is social. He is verbal. He has great behaviour. He has brilliant eye contact. Then I started thinking about what I need to work on.
1.Sensory seeking, this is getting better the older he gets and with his communication improing he can tell me what he requires.
2.FOOD, fuck this food situation. I swear I feel like I have tried everything.
3. Toilet training. AGAIN another thing that isn't falling into place.
So I contacted a fellow blogging ASD Mummy who is trained in ABA. She gave me some great pointers. So when the kids went to bed I put my time to good use and I compiled some reward charts.
Can I just say thank goodness for fellow mothers who are willing to share their information to help others! Therapists and specialists don't know everything and I find most of the time that the credible help comes from those that experience it first hand.
So after a good sleep (NEEDED) I woke with new techniques to try. Will keep you posted.
James is starting Pre school twice a week this term.
I was never ever going to send James to Pre school..... LOL LOL LOL. But 2 terms ago this ASD mummy had a nervous breakdown and realized that I needed a break. So I found the perfect Pre school, and said I would only leave him for a few hours. His support worker on the very first day told me to leave him all day and she will call if I am needed. I rang the school every 30 minutes! He was FINE! Infact when I went to get him he didn't want to leave.
We literally walk in the door know and 5 seconds later he is screaming at me to leave!
I noticed a HUGE improvement in James when he started school, so I thought why not see if he can go two days. The school agreed.
The reason I am saying this is because I wanted to know if anyone else sends their children to school with a 5 page essay???? Not kidding. Every time James goes to school I send him along with his communication book and I fill it with so many notes that the poor teachers probably think I am a nut job.
Being a parent is hard. Being a parent of a child with additional needs is very hard. The amount of things you have to plan and deal with is on an insane level very often. No wonder James Psychologist asked me if I was ready... I am not going to stop all of this but I understand now why parents get the label and just do the bare minimum. I am not judging them, its bloody hard.
But I stand by my moto... WHATEVER IT TAKES.