It is 11.30am this world.
Today I am a little dumb founded again by the lack of understanding amongst SOME fellow 'autism' parents. Yes, sad! All of my negative feedback comes from a pocket of autism parents. Why? It's not a bloody competition. I have a great network of autism families that support and follow our journey but this 'little' click of nego bobs just doesn't stop!
I have once again been flooded with a batch of negative messsges and emails ( same person, no doubt)!!!!
Why the constant questioning of my child?
Questioning me about whether he is 'actually autistic'.... of course he bloody is. I don't have 5000 reports on his diagnosis for fun! We don't spend thousands of dollars on treatment and therapies FOR FUN. I don't tell this story FOR FUN or 'attention' like you think... if I wanted attention I would continue performing on stage! I have had my fair share of stage time. It's about my children now you looney.
Do you keep questioning me because he 'doesn't look' autistic?
Can I ask you then.... what does autism look like?
You keep stating that James doesn't have classic autism traits.... how tha fuck would you know?!
Because I only post snippets of James and snippets of our life on instagram... you see about 5 percent of our day! And if you were correctly educated in autism you would know the breakdown of diagnosis.
How ow many times do I need to remind you of how big the autism spectrum is?
Every single child on the autism spectrum has different abilities and different disabilities. Like DAH that's why it's called a SPECTRUM. You keep saying but James talks, James is social, James has functional play. GREAT! You've been watching... you have just pointed out his positives! That means I am doing my job well.
I don't need to sit here and list his short comings, because it's not about that and I don't need to justify him for you!
I choose to share positive achievements majority of the time. We are a world of negatively, a world of misguided information about autism. It's about showing strengths... these children ( including yours) have so much to give. We need all types of minds in this world, you've got an incredible one under your roof. Instead of wasting your time and energy on my journey, look at your own. Clearly you aren't happy... that's evident, make some positive changes to turn things around. I ain't your sounding board! The end.