Hello PARTY PEOPLE.... It's FRIDAY!!
That actually doesn't mean much in this household other than we get to have Daddy a little longer in our presence.
Poor James is not well still.... NOW we have a congested nose, when it runs he screams 'TISSUE' .... I mean he SCREAMS. This little sensory soul hates his nose running. This morning I am going to attempt to get him to wipe it himself.... we will see.
Scarlett the runs, I hope that means she has skipped out on the vomiting. Mummy feels horrible, I don't know if I have a little bug, lack of sleep or its because we have been caged animals for a few days now. I don't do well with staying home for long periods of time... I get bored! I like to see the world. As does my husband, does that mean we have some form of ASD.... ADHD perhaps???
They say we all land on the spectrum somewhere, its just whether you need assistance with your daily duties as to whether you need the label.
So yesterday I spoke to quiet a few people about the sleep of their ASD children, or the lack of sleep with their children.
James NEVER EVER SLEPT. LIKE EVER
From 3 weeks old he wouldn't day sleep until I invested in a baby Bjorn carrier and I would wear him a lot of the day. This stopped his random screaming and he would sleep on and off.
James didn't sleep of a night time unless he was on his daddies chest, upright on the lounge. Even then it was sleep for 1 hour, wake for 2 hours etc etc. Then as he got older we couldn't get him to sleep and couldn't get him to stay asleep. He still wasn't sleeping up until 2.5years old, this is when I started researching SPD. So we invested in a weighted blanket, slept next to him, would put pressure on his chest when he would start to wake.... this was working.
You see most SPD kiddies need Proprioceptive input to go to sleep and stay asleep.
So this was working but he still was a horrible sleeper.
Just before James turned 3 we recruited the services of an ASD dietitian.
James was prescription formula feed back then like he is today, but he also used to eat popcorn.
I used to buy a healthy POPPED CORN, nothing but CORN.
The dietitian said that was a FIRST issue. Corn is a natural MSG, MSG and the ASD brain DO NOT go together. We took the corn out of James' diet. He had pretty severe withdraws BUT his sleep improved, his speech improved, meltdowns became less .... corn is evil and especially if its GMO corn.
See how much diet effects the ASD child...
So then she sent us for full bloods.... turns out James had like NO IRON, along with a lot of other deficiencies, that's for another day. As soon as we put James on iron supplements he now sleeps all night, in his own bed and wakes refreshed in the morning, as a result he has better attention and less meltdowns.
It's still hard to get him to sleep, his SPD is to blame for that, you see all SPD kiddies have to regulate their systems before they can shut their systems down.
Every child is different but James uses the ipad to zone into his visual sense so he can shut out all external noises so he can regulate enough to sleep.
He also goes in the ball pitt about 5pm everyday, this gives him the proprioceptive and vestibular input that he requires. He will often ask me for his music to be played too, this is special music put together by an OT who is very experienced with SPD, its crazy how it calms him right down.
I suppose all I am saying is not to listen to doctors when they say its normal that they don't sleep. I went to our GP, immunologist and pediatrician multiples times (a week) and they kept saying it was normal. Do your own research. The best book I have read to date is 'The out of Sync child'.... its like a sensory bible. It explains how differently the children are wired, how to help them and why they do a lot of what they do. Also if you ever get a chance to do the Traffic Jam in my Brain seminar (its now online) that will help you so much.
Its about getting working with your special little soul to see what works for them. Its our responsibility to help them function to their fullest, medical professionals are all to quick to say, 'oh, he has autism. Thats normal.'..... I call bullshit on all of that! Research, educate yourself and implement....
You have NOTHING to lose and EVERYTHING to gain! A child out of the shadows should be a great driving force...